Thursday, November 11, 2010

Diabetes awareness

There is more than one kind of diabetes. This isn't a knock on type 2 and gestational diabetes people, but definitely a knock on society's perceptions at large. People have one musty, old perception of what diabetes looks like, and it's always someone older, heavier, and lazy. Wouldn't they be surprised to meet our fit type 2 friends, or the 20 year old gestational diabetic? Or a "juvenile diabetic" who is only nine years old? Diabetes doesn't have "a look." This disease does not discriminate.

Diabetes affects more than just the person playing host to it. Hannah is the one wearing the insulin pump, and actually feeling these blood sugar highs and lows. But she's not the only one affected by diabetes. We as parents have to care for her when she is young, acting as her pancreas. Her friends have been affected by her lows and highs while playing, school nurse takes care of her during the day and certain family and friends have played a role in caregiving too. Diabetes isn't just hers. It belongs to everyone who cares about her.

Diabetes isn't just a physiological disease. It's an emotional one, too. It's not just a question of blood sugar levels and insulin supplementation. It's about managing the emotions that come as part of life with a chronic illness. It's about the guilt of complications. The pressure to control an uncontrollable disease. The hope that tomorrow will come without incident. I feel that the emotional aspects of diabetes need to be attended to with the same care and diligence as an A1C level. Maybe more so, because life needs to be happy, whether it's a short life or a very long one.

Diabetes isn't easy. We just make it look that way sometimes. Some of the perceptions that the general public has is that diabetes is easy to handle. "You just wear the pump, test your blood sugar, and watch your diet and you'll be fine, right?" Wrong. You can do the exact same thing every day and still see varying diabetes outcomes. It's never all figured out. Diabetes is a daily dance of numbers and emotions and even though we make it look easy sometimes, it sure isn't.

No diabetes is the same. Even within a community of diabetics, there are still widely varying ways of treating diabetes and even more ways of dealing with the emotional aspects. There's no winning combination and no "right" way to deal with this disease. Being on a pump means you use a pump to infuse your insulin - this doesn't necessarily mean you are taking better care of yourself than the person who opts for injections. Low-carb doesn't work for everyone, and neither do certain medications. Your diabetes may vary and what works for you may not work for everyone. It's important to remember that this disease doesn't have a predictable path, so there are plenty of "right' ways to handle it.

Just because we don't look sick doesn't mean we don't deserve a cure. That statement pretty much sums it up. We might make it look easy, but it isn't. There's no rhyme or reason to this disease, and even with the best care and the best intentions, complications can sometimes still come calling. And their effects are devastating. Diabetes, of all kinds, deserves a cure. No one asked for any of this. We deserve better than society thinking that diabetes isn't worth their attention. We deserve a cure.



excerpts taken from Six Until Me blog by Kerry Sparling

Thursday, November 4, 2010

2011 JDRF Walk for a Cure - The greatest Walk on Earth

Head over to our JDRF 2011 Walk for a Cure page and sign up to join team Hannah's Hopeful Hearts". Walk day is February 26, 2011 at the Mall of America, Bloomington, MN. If your not able to make the walk, please consider a donation to JDRF, every little bit makes a difference. Together we CAN make a difference.

http://walk.jdrf.org/index.cfm?fuseaction=extranet.personalpage&confirmid=87761209