Merry Christmas !!
With all the stress and added hecticness this month, I still feel truly blessed.
We continue to move forward with everyday life and are thankful for so much.... although times are tough espicially this time of year, I look to God for strength and guidance.
Hannah has made some huge adjustments the past week in her diabetes, as she has become more aware of her situation, and has even come to accept it more, which is a big step. We've all come a long way the past week or so oin dealing with all of this. She has wanted to become more involved in her blood sugar tests, in that she wants to get it all set up for us....she says, "I wanna be the grown up, and get it all set up". She picks and wipes her own finger now for the finger pricks, and gets everything ready, still with a little hesitation, she allows me to prick her finger, with a smaller owe!, each time...less wiggling around too. She has finally taken my suggestion and cuddling her blanket or a stuffed animal helps too. She has even started watching the blood go into the test strip and thinks it's pretty cool how the blood from her finger gets sucked up into the strip. She is just as anxious as us to see the number pop up in 5 seconds.
Her insulin shots have become much easier as well, as that hurts even less that the finger pokes. She also picks the spot on her leg, as to where the shot will go. She has some specific routines at home as to where it is to be done and the bathroom seems to be the spot for the insulin. So no matter where we are for the blood sugar test we have to go to the bathroom for the insulin.
She favors her right leg for her insulin, and that leg has some red pokes on it and several small bruises from the shot itself...they go away. I haven't convinced her to try the backs of her arms yet. It would be easier for when we are away from home to just do her arm and not have to go in the bathroom each time to pull her pants down. Her left leg she allows us to use for the Lantus (24 hr insulin) , sicne they recommended that at the hospital, she remembers that, Lantus -LEFT. I guess I just don't want to over do her right leg, but in time I'm sure she will let us try different spots.
She is still in the "honeymoon" phase of her diabetes, which is where her pancreas is still producing some insulin within the beta cells still in her body... within 6 mo. to a year she will need increasing amounts of insulin to cover after the honeymoon phase ends and her pancreas is no longer producing insulin at all. Right now her insulin amounts are pretty low, and gets approx. 1 unit per 30-40 grams of carbs/meal, which is a max of about 3.5-4 units that she has ever gotton at once. Usually her meals average around 2-3 units. At supper time she also gets her Lantus dose ( long acting)-- and that has been good at 2 units. Keeps her overnight levels consistantly normal, which has eliminated us having to get up in the middle of the night to check her. We still have to do the overnight checks once a month, and if we question her bedtime level or any snacks before bed we are unsure how it will affect her. She has helped me pick out her diabetic medical ID bracelet online, so that should arrive in a few weeks.
Today we had our 2 week post hospital check and education at the McNeely Pediatric Diabetes Center, connected to Children's Hospital. It's actually been 3 weeks already, so not sure why they scheduled it for this week, but we were glad to just do it today on Christmas Eve and then Hannah got to attend her last day of school before break yesterday for the class party, which the appt. was originally scheduled for yesterday.
We had to get up at 6am!! uuggh. for a 9am appt. We met with a diabetes nurse educator, who explained to us sick days more in depth, and answered some more questions we had, and then we met with a nurse practioner who looked at Hannah, and then also assessed Hannah's blood sugar levels from the past weeks, which they are able to download all the numbers off of our meter. They came up with an average level over the last 3 weeks of 141... (normal is 80-180). Even though her numbers seemed all over the place the last few weeks, they are more worried about lows than highs and when they came up with an average, that sounds better than having all the numbers in front of us.
Besides the first week of all the highs, as she was developing the stomach flu, she hasn't had too many more highs, and has had 8 lows. Lows are anything under 80. She had 22 highs, but alot of that was insulin and dose adjustments at the beginning plus her body fighting off sickness. She really has been doing well the last week or so, and they made a few more dose adjustments today to help fix the few lows.
She was also changed from Lantus, to Levamere, another long acting 24 hr insulin. We stated she was saying the Lantus hurt in her leg for a minute or so after the needle was out....and that can happen with Lantus ( it can hurt more in some people I guess), so she was switched to Levamir, which shouldn't hurt now, so we'll see. We also noted she has gained back all the weight she lost, plus gained almost a pound....considering she was 42 lbs and now is back up to 47.
We also met with the dietician and the social worker, and got all the kinks worked out with anymore questions we had. The appointment took about 2 hours and then we had to run down to the pharmacy to get some things down there. They gave us the wrong syringes when we left the hospital, so we had to get some at our pharmacy to get by, and then exchanged the wrong ones today--they gave us 100 unit ones vs the 30unit onces we need.
We went to the United Hospital cafateria ( which is also connected to Childrens Hospital) for lunch as we waited for the pharmacy to get stuff together. It was early only like 11am, and Hannah wouldn't eat anything except the fruit snacks I packed for 'lows' and some milk, we all had a meal and tried to get her to eat, but she just wouldn't. She said she wasn't hungry. We have learned how important it is for her to eat on time or at some sort of schedule. WE left the clinic at about 12noon or so, and she got extremly crabby. We knew we should have stayed until she ate, but we figured at some point in the next 30 min she'd be starving and we'd have to stop somewhere. She kept saying she just wanted to go home and eat. Although I tested her in the bathroom by the cafateria, she seemd hesitant to bother with the insulin in order to eat. She was only at 82 when we were eating lunch, so that is why we let her have the fruit snacks and milk without insulin coverage. We had to make one stop for a christmas present, and she didnt' want to, she started acting up, not wanting to walk, just angry at life at the moment. We figured we needed to get her something to eat SOON> We made it back to the car and she was just acting up-- to an extreme. Ready to go, she wouldn't buckle herself in. She was so stubborn and refused to do it and pretty much had so much anxiety built up by now that we were all feeling the stress. Steve wouldn't leave until she buckled up and we sat there for probably 10 min, some of it in silence and some of it trying to talk some sense into her--which she wasn't listening to any of it...Finally Steve got her to buckle up with threats that Santa may not come.....but even up until this point that wasn't working. She finally did it though. As we left and got on 494--we are all the way in Bloomington by now-- we had a long drive home and knew we needed to stop to get her something to eat yet. She was still acting up, and wouldn't sit up straight, and after Steve yelled at her to "sit up, his famous "knock it off" phrase, and he also made another threat that he was gonna call Santa and leave a message ( he he!) not to come to our house. She got so worked up after he yelled, that she had a hard time breathing, and was coughing and such...maybe more of an act, but I couldn't take it anymore and we pulled off in Edina at a DQ ASAP!!! I told Steve and Bailey to go inside.... as I needed to calm her down ( and everyone else needed a break) and I talked to her. At first she kept saying she wasn't listening to me, but after a few minutes, of me tearing up she got it, that this wasn't working. I explained to her that her diabetes can make her sick and if she didn't stop this she would be back in the hospital. She needed to eat, as of right then it was going on 1:30pm. So I tested her in the van and she was 187--which was a good number considering I was thinking she'd be either high or low, considering her attitude. High's and lows can make her irritable and she was definatly that. I got her calmed down and we went in and ordered her some food, got her the insulin, she ate and after all that..... was fine.
Just made for a stressful time. We made it back home by 3pm and are now getting ready for supper and our children's Christmas Eve service at church. Santa usually comes while we are at church.....so we'll see, the kids are excited. We told Bailey this summer about Santa, but he still enjoys the season and helping us with the Santa story for Hannah's sake yet.....we still know what the season is all about and that Jesus birth is what we will celebrate tonight and tomorrow.
My parents weren't able to make it to MN for Christmas this year, because of some bad roads and alot of snow in WI over the past several days....they may come next week, so we will see. We are so used to having them here, it will be a little different this year.
Wishing you all a Merry Christmas.
Wednesday, December 24, 2008
Monday, December 22, 2008
Prayer for a little boy
Kathy, a friend of mine back in WI, has a nephew who has been going through alot the last few months. A healthy baby boy, turned sick. The family is now at Childrens Hospital of WI, in Milwaukee, and their little boy who spent his 1st birthday in another hospital in IL where they live, now has been diagnosed with a brain tumor. It's still small, but aggressive and wraps partly around the brain stem. Thinking their little boy, as he is called Issy,( Israel), was throwing up constantly from a food adversion, they were taking steps to get him used to food when things just weren't getting better and only worse, which is how they made the trip to visit family in WI and then ended up at Children's Hospital. Now he will spend christmas in the hospital as well.
Please pray for this family, as they are doing surgery right now to remove the tumor, as much of it as safely possible. They will then send it out to be tested, so they know what they are dealing with.
I have never met Issy or his daddy, but do know Kathy's sister Lori from back when I was in high school.
It's a parents nightmare, and I can only join in hoping and praying that God will grant healing, and peace.
here is healthy Issy
Please pray for this family, as they are doing surgery right now to remove the tumor, as much of it as safely possible. They will then send it out to be tested, so they know what they are dealing with.
I have never met Issy or his daddy, but do know Kathy's sister Lori from back when I was in high school.
It's a parents nightmare, and I can only join in hoping and praying that God will grant healing, and peace.
here is healthy Issy
Sunday, December 21, 2008
kids fighting
This is the first in a sequence of videos I took of the kids outside. At first they were fighting and I was laughing my head off from the inside, so I quickly got the camera to video tape them and then I think they saw me and more so were putting on a show.
It's in 3 seperate videos because Hannah came in crying twice and Bailey came in once to complain. I only uploaded one video so far cuz it took so long...but it sure was funny to watch.
Thursday, December 18, 2008
week in review
The last few weeks have gone by pretty quickly and I have one more day off of work before I go back for the weekend. I'm not sure of my housekeeping schedule for next week yet, but I will have a busy week regardless of maybe fitting some of that in yet. Christmas came up too fast this year....
Kids have school until Tuesday, which is also the day my parents come into town for Christmas. We decided to change Hannah's 2 week hospital follow up appointment from Tues to Wed. becasue she didn't want to miss her last day of school before break. So now though, we have to be at the diabetes clinic at Children's in St Paul by 9am on Wed.(christmas eve). I guess then she won't have to miss school and my parents are here to stay home with Bailey. I know we have more education meetings, and they will also meet with Hannah and see how her levels are doing and such. It's supposed to last up to 3 hrs. I'm sure we'll come home overwhelmed again.
I also work Christmas Day at 4pm, so not looking forward to that, and also the day after christmas at 4 again, but then have the rest of the weekend off.
Hannah is getting some better at all of this diabetes stuff and so are we. It's being accepted more by all of us, and it will still take some time. Hannah still will say at her blood sugar checks and insulin shots, that she "doesn't want to do it" !! and will repeat that over and over while wiggling around, she will let us do it, but not without letting us know that she is againest it all.
Her levels have been running pretty good,( much better than last week anyway) although they are still all over the place. I just want to see a good number each time. She is the best in the mornings, although at bedtime now she has been running a little low. The daytime numbers have been better too at school, and haven't got a call all week from the nurse. So all in all it's been a much better week, and hope to have each week get better. Different environments scare her, we have such a routine down at home and school now....so now I suppose it will be another thing to work on going places and having to incoorporate all this in other places and situations. It's ongoing education forever, as she grows and changes so will her diabetes.
Bailey has been busy with hockey and had his first game on Tuesday. They played River Lakes, which is Paynesville, Cold Spring and Richmond combined. They have gotton better by combining their teams this year, and although it was a competitive game it was also a frustrating game to watch...we were ahead 2-0 after the 1st period, but they they caught up and even though we scored another goal in the 3rd, they had scored 5 in the 2nd and 3rd. So we lost 3-5. Lots of practice still needed at this level. Bailey played good and hussles, just needs to be a little more aggressive. He plays 2 more games this weekend on Sat and then again on Sunday. I can make the one on Sat. but Sunday's game is later in the day and then I work.
I'll be missing a few games this year, which I'm not too happy about, but can't have every weekend off.
On Wed we had out local newspaper reporter come over for a interview. She is writing a story on Type 1 Diabetes and Hannah's story. Steve's sister Jen, works for the Delano Herald Journal. Our paper is called the Enterprise Dispatch, but is part of the Herlad Journal "family". Her paper suggested writing a story about diabetes and Hannah, and Jen then contacted our town's paper to have them come interview us for the story. I wasn't too sure about it all at first, but I think it will be informative for the commuinty.
Looking forward to reading our story in print.
Kids have school until Tuesday, which is also the day my parents come into town for Christmas. We decided to change Hannah's 2 week hospital follow up appointment from Tues to Wed. becasue she didn't want to miss her last day of school before break. So now though, we have to be at the diabetes clinic at Children's in St Paul by 9am on Wed.(christmas eve). I guess then she won't have to miss school and my parents are here to stay home with Bailey. I know we have more education meetings, and they will also meet with Hannah and see how her levels are doing and such. It's supposed to last up to 3 hrs. I'm sure we'll come home overwhelmed again.
I also work Christmas Day at 4pm, so not looking forward to that, and also the day after christmas at 4 again, but then have the rest of the weekend off.
Hannah is getting some better at all of this diabetes stuff and so are we. It's being accepted more by all of us, and it will still take some time. Hannah still will say at her blood sugar checks and insulin shots, that she "doesn't want to do it" !! and will repeat that over and over while wiggling around, she will let us do it, but not without letting us know that she is againest it all.
Her levels have been running pretty good,( much better than last week anyway) although they are still all over the place. I just want to see a good number each time. She is the best in the mornings, although at bedtime now she has been running a little low. The daytime numbers have been better too at school, and haven't got a call all week from the nurse. So all in all it's been a much better week, and hope to have each week get better. Different environments scare her, we have such a routine down at home and school now....so now I suppose it will be another thing to work on going places and having to incoorporate all this in other places and situations. It's ongoing education forever, as she grows and changes so will her diabetes.
Bailey has been busy with hockey and had his first game on Tuesday. They played River Lakes, which is Paynesville, Cold Spring and Richmond combined. They have gotton better by combining their teams this year, and although it was a competitive game it was also a frustrating game to watch...we were ahead 2-0 after the 1st period, but they they caught up and even though we scored another goal in the 3rd, they had scored 5 in the 2nd and 3rd. So we lost 3-5. Lots of practice still needed at this level. Bailey played good and hussles, just needs to be a little more aggressive. He plays 2 more games this weekend on Sat and then again on Sunday. I can make the one on Sat. but Sunday's game is later in the day and then I work.
I'll be missing a few games this year, which I'm not too happy about, but can't have every weekend off.
On Wed we had out local newspaper reporter come over for a interview. She is writing a story on Type 1 Diabetes and Hannah's story. Steve's sister Jen, works for the Delano Herald Journal. Our paper is called the Enterprise Dispatch, but is part of the Herlad Journal "family". Her paper suggested writing a story about diabetes and Hannah, and Jen then contacted our town's paper to have them come interview us for the story. I wasn't too sure about it all at first, but I think it will be informative for the commuinty.
Looking forward to reading our story in print.
Monday, December 15, 2008
COOKIES !!!!
It was a good weekend. Hannah also had a good weekend regarding her diabetes. It felt like we had a more normal routine, and her levels were mostly good, which made things seem better. She was feeling better on Saturday morning, and we decided to bake christmas cookies.
Sunday we had some bad weather with some rain, then freezing rain, then snow. A bad combo. We decided it was too unsafe to drive to Litchfield for church, and then also later for hockey practice. We stayed in with the weather, and Hannah and I baked some more cookies and Bailey and Dad watched football and played video games. Bailey wanted to help some with the cookies too.
Sunday we had some bad weather with some rain, then freezing rain, then snow. A bad combo. We decided it was too unsafe to drive to Litchfield for church, and then also later for hockey practice. We stayed in with the weather, and Hannah and I baked some more cookies and Bailey and Dad watched football and played video games. Bailey wanted to help some with the cookies too.
Saturday, December 13, 2008
a good night
Hannah had a good night....she ate some soup at about 4:30pm last night Which she almost had to because her blood sugar level dropped again at 4:30 to 67. She just wouldn't drink anything I offered her all day. So I then convinced her to have some soup, it always has made her feel better in the past, in which she loved and ate the whole thing, I had to feed her though, not sure why, but I did, she liked that. Whatever to make her eat/drink. She had part of a blueberry muffin, and some juice as well. She laid in Bailey's room all day watching TV, and on and off sleeping, so I made probably a 100 trips up the steps all day. When I rechecked her at 5pm, her level was back up to normal. It just gets so scary when it gets too low, which up until now, at home we really only have been dealing with high's. We've been just going from one extreme to the other, also with her drinking SO much a week a ago and now wouldn't drink anything.
I didnt' give her any insulin all day, except at 5pm her long acting 24 hr Lantus dose. So we know we are off schedule when no insulin was given all day...no carbs taken in to give it to her for.
She slept good all night and in fact is still sleeping at and it's 9am!!, both kids need some catching up sleep. Her night-time check was normal and also did another one earlier this morning, just to make sure things weren't dropping again and it was good. I slept then until 8:30 which felt good.
So better get her up now and on to another day with diabetes. I think it will start to get better now, it's kinda early in the day to tell, but I can always hope.
Depending on how she feels we will be making christmas cookies this weekend.
I didnt' give her any insulin all day, except at 5pm her long acting 24 hr Lantus dose. So we know we are off schedule when no insulin was given all day...no carbs taken in to give it to her for.
She slept good all night and in fact is still sleeping at and it's 9am!!, both kids need some catching up sleep. Her night-time check was normal and also did another one earlier this morning, just to make sure things weren't dropping again and it was good. I slept then until 8:30 which felt good.
So better get her up now and on to another day with diabetes. I think it will start to get better now, it's kinda early in the day to tell, but I can always hope.
Depending on how she feels we will be making christmas cookies this weekend.
Friday, December 12, 2008
It's been a long week.....
This has been the hardest, most stressful thing I have ever been though. Nothing compares. I know that it is supposed to get better, but it's been hard to see that far ahead. The days this last week have gone up and down in a moment. At times it looks as though things are starting to get better, than BAM...right back down to the beginning as we start all over. Monday right away her doses were changed. Hannah went back to school on Tuesday after talking with the school nurses later in the day Monday. The school part of it was actually a relief, as she did wonderful for the school nurse Tues. morning. Having a strange person, and a friend in the room for support, certainly made Hannah nervous and behave, not wanting to throw a mini fit in front of her friend.
I was supposed to come for the first test that morning before gym, but made it there a minute or 2 too late and she had aleady did the test. She said Hannah did fine. So all week I have just been "on call" for any problems and not had to go in each time. She did call me everyday though, to tell us her blood sugar was high. Tuesday/Wed. they wouldn't let her do gym, but after us calling the nurse from Children's she was allowed to do gym on Thursday even though she was still high....Exercise will bring down the levels to a degree, so they started checking her after gym on Thursday instead of before. She was still running high.
Tuesday she was in the 300's to high 200's all day and Wed was the worst she was in the 400's all day and yesterday was high 300's all day. So after several calls to the diabetes nurse all week, we have adjusted her breakfast dose the most throughout the week. The other meals and doses were slightly adjusted. I won't mention all the times this week, I have almost lost it....Hannah still gives me such a hard time with everything, she is a tad better for Steve but not much, and he hasn't had to do it all that much over the week. She gets so angry with it all, throws things, stalls, cries several times a day, whines, is unsure of so much....I try to stay calm for a few minutes before I have to just take charge, stop crying myself, and just do what needs to be done. I hate that it has to be such a struggle. She spent 10 minutes before having to get insulin last night, with a washcloth over her eye because she said her eye hurt, she was angry...I'm not even sure if her eye even hurt, more of a way to stall, she was throwing books, hitting her self in the eye, just plain mad at her eye, but I'm not so sure that was the real issue. I sat and watched her do this for 10 min before I had to just give her the insulin so she could eat supper and we could get ready for her program.
So today I figured things would start to look up, with our new doses to try. Well...time for a new plan again, for today...she went to bed with a tummy ache last night. She had her christmas concert for school last night and was feeling well. Besides that huge struggle at supper time, she was feeling good.
She had a hardboiled egg before bed, she only eats the white part and eggs are carb free, so she likes that as a snack sometimes now.
We no more than made it up to bed and she said her tummy hurt. We talked for awhile and then she went to sleep. About 10:30pm, I heard her throwing up--alot. I get so mad when the kids can't make it to the bathroom. What a awefull mess to clean up!! She laid in our bed while I did the clean up. uuggh. She threw up once more, but made it to the bathroom. I got everything clean and went back to bed.
I tested her then at 1:30am like I have been every night, and her level was 125--her overnight numbers have always been good (normal is 80-180). She woke up at 4am to throw up a little again, and slept then until morning, when I woke her up at 6:30 to test her and see how she was feeling for school. She was within range at 6:30, and let her go back to sleep, cuz she said her tummy still hurt, and decided then that school wasn't gonna work today.
After a few more hours, I checked on her and she wanted to eat, so I gave her a small version of her normal breakfast, and counted carbs and give her insulin. Her breakfast dose was just raised, so I gave her 3 units for carb coverage. It was more my fault than anything, giving her the insulin before I knew if she would actually eat a normal breakfast after throwing up all night. We have to normally give it before she eats, so it's kinda hard to guesstimate what she will actually eat, but today I should have waited, being that she wasn't feeling too well. She didn't and wouldn't eat anything. So I started to freak out a little, knowing she just got insulin.
She was at 97 mg/dl, at 8:30am and knew her levels would start to drop alot now. I tried to convince her to eat/drink. I made calls to the nurse and clinic in St Paul. She didn't get back to me until 10:30am, which I had already tested her at 10am and she was at 47 already...I convinced Hannah she had to drink juice and eat some fruit snacks, and then at 10:30 it was at 67. Still way too low. Although she wasn't showing any real significant signs of being that low, she was weak and shakey. Then at 10:30 the nurse calls me back and I'm a mess. She talks me through the Glucogon shot. We have an emergency "low" kit. Never thought I'd have to use it already. We haven't been educated on that too much yet, or about sick days, which is at her 2 week check on the 23rd, so I was a little lost as to what to do.
So I gave her 10 units of glucogon,per nurse Jodi, at 10:40 or so, and when I checked her blood sugar at 11am it was already up to 215...ahhhhh, and then at 11:30 it was 224 and also checked for ketones in her urine- negative for now.:) If she starts to produce ketones I need to call the urgent line back. The Glucogon perked her up almost immediately and she sat up to color.
She will not eat or drink right now, and the nurse said I have to try to keep her hydrated with carbs, and after she has kept that down for 30 min then give her her insulin coverage dose. So far I haven't even been able to get her to drink. We'll see what the rest of the day brings. I'm hoping she is drinking and eating maybe soup or something by supper time. She fell asleep now, so will test her in about 30minutes and try all day to get some fluids in her.
Nurse Jodi has been so helpful the past week, she also thinks now that maybe the reason Hannah's numbers were so high this week, was she was trying to fight off this virus she now has. Hannah also had a slight upper respiratory thing late last week when we first discovered all this, so her body was fighting off a bunch of viruses, which maybe made for a rough week all around.
THANKS FOR THE PRAYERS. I'VE NEVER NEEDED THEM SO MUCH AS NOW.
I was supposed to come for the first test that morning before gym, but made it there a minute or 2 too late and she had aleady did the test. She said Hannah did fine. So all week I have just been "on call" for any problems and not had to go in each time. She did call me everyday though, to tell us her blood sugar was high. Tuesday/Wed. they wouldn't let her do gym, but after us calling the nurse from Children's she was allowed to do gym on Thursday even though she was still high....Exercise will bring down the levels to a degree, so they started checking her after gym on Thursday instead of before. She was still running high.
Tuesday she was in the 300's to high 200's all day and Wed was the worst she was in the 400's all day and yesterday was high 300's all day. So after several calls to the diabetes nurse all week, we have adjusted her breakfast dose the most throughout the week. The other meals and doses were slightly adjusted. I won't mention all the times this week, I have almost lost it....Hannah still gives me such a hard time with everything, she is a tad better for Steve but not much, and he hasn't had to do it all that much over the week. She gets so angry with it all, throws things, stalls, cries several times a day, whines, is unsure of so much....I try to stay calm for a few minutes before I have to just take charge, stop crying myself, and just do what needs to be done. I hate that it has to be such a struggle. She spent 10 minutes before having to get insulin last night, with a washcloth over her eye because she said her eye hurt, she was angry...I'm not even sure if her eye even hurt, more of a way to stall, she was throwing books, hitting her self in the eye, just plain mad at her eye, but I'm not so sure that was the real issue. I sat and watched her do this for 10 min before I had to just give her the insulin so she could eat supper and we could get ready for her program.
So today I figured things would start to look up, with our new doses to try. Well...time for a new plan again, for today...she went to bed with a tummy ache last night. She had her christmas concert for school last night and was feeling well. Besides that huge struggle at supper time, she was feeling good.
She had a hardboiled egg before bed, she only eats the white part and eggs are carb free, so she likes that as a snack sometimes now.
We no more than made it up to bed and she said her tummy hurt. We talked for awhile and then she went to sleep. About 10:30pm, I heard her throwing up--alot. I get so mad when the kids can't make it to the bathroom. What a awefull mess to clean up!! She laid in our bed while I did the clean up. uuggh. She threw up once more, but made it to the bathroom. I got everything clean and went back to bed.
I tested her then at 1:30am like I have been every night, and her level was 125--her overnight numbers have always been good (normal is 80-180). She woke up at 4am to throw up a little again, and slept then until morning, when I woke her up at 6:30 to test her and see how she was feeling for school. She was within range at 6:30, and let her go back to sleep, cuz she said her tummy still hurt, and decided then that school wasn't gonna work today.
After a few more hours, I checked on her and she wanted to eat, so I gave her a small version of her normal breakfast, and counted carbs and give her insulin. Her breakfast dose was just raised, so I gave her 3 units for carb coverage. It was more my fault than anything, giving her the insulin before I knew if she would actually eat a normal breakfast after throwing up all night. We have to normally give it before she eats, so it's kinda hard to guesstimate what she will actually eat, but today I should have waited, being that she wasn't feeling too well. She didn't and wouldn't eat anything. So I started to freak out a little, knowing she just got insulin.
She was at 97 mg/dl, at 8:30am and knew her levels would start to drop alot now. I tried to convince her to eat/drink. I made calls to the nurse and clinic in St Paul. She didn't get back to me until 10:30am, which I had already tested her at 10am and she was at 47 already...I convinced Hannah she had to drink juice and eat some fruit snacks, and then at 10:30 it was at 67. Still way too low. Although she wasn't showing any real significant signs of being that low, she was weak and shakey. Then at 10:30 the nurse calls me back and I'm a mess. She talks me through the Glucogon shot. We have an emergency "low" kit. Never thought I'd have to use it already. We haven't been educated on that too much yet, or about sick days, which is at her 2 week check on the 23rd, so I was a little lost as to what to do.
So I gave her 10 units of glucogon,per nurse Jodi, at 10:40 or so, and when I checked her blood sugar at 11am it was already up to 215...ahhhhh, and then at 11:30 it was 224 and also checked for ketones in her urine- negative for now.:) If she starts to produce ketones I need to call the urgent line back. The Glucogon perked her up almost immediately and she sat up to color.
She will not eat or drink right now, and the nurse said I have to try to keep her hydrated with carbs, and after she has kept that down for 30 min then give her her insulin coverage dose. So far I haven't even been able to get her to drink. We'll see what the rest of the day brings. I'm hoping she is drinking and eating maybe soup or something by supper time. She fell asleep now, so will test her in about 30minutes and try all day to get some fluids in her.
Nurse Jodi has been so helpful the past week, she also thinks now that maybe the reason Hannah's numbers were so high this week, was she was trying to fight off this virus she now has. Hannah also had a slight upper respiratory thing late last week when we first discovered all this, so her body was fighting off a bunch of viruses, which maybe made for a rough week all around.
THANKS FOR THE PRAYERS. I'VE NEVER NEEDED THEM SO MUCH AS NOW.
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